Research studies and reviews
Below are some of the research papers we used to understand what was type of intervention was needed and how to embed this knowledge into our kits.
School-aged and adolescent children’s experience when a parent has non-terminal cancer: a systematic review and meta-synthesis of qualitative studies.
Huang, O’Connor and Lee. Psycho-Oncology 2013; 10: 3457.
Use and Need for Psycho social Support in Cancer Patients.
Ernst et al., Cancer 2013; 119: 2333-41.
Breast cancer in the family—children’s perceptions of their mother’s cancer and its initial treatment: qualitative study
Forrest, et al., BMJ Online 13 April 2006.
How do I tell the children? Women’s experiences of sharing information about breast cancer diagnosis and treatment
Asbury, Lalayiannis, Walshe. European Journal of Oncology Nursing 2014: 18 :570
Bereavement in childhood: the impact on psychological and educational outcomes and the effectiveness of support services
Akerman and Statham Working Paper No. 25 February 2014. Childhood Wellbeng Research Centre.
Quality of Life of Multiethnic Adolescents Living with a Parent with Cancer
Ainuddin et al., Asian Pacific J Cancer Prev; 13: 6289-6294
Qualitative interview study of communication between parents and children about maternal breast cancer
Barnes et al., British Medical Journal 2000: 321: 19-26.
The psychosocial impact of parental cancer on children and adolescents: a systematic review.
Osborn. Psycho-Oncology (2007) 16: 101–126,
The quality of communication between parents and adolescent children in the case of parental cancer.
Huizinga et al., Annals of Oncology 2005; 16: 1956–1961.
Stress response symptoms in adolescent and young adult children of parents diagnosed with cancer.
Huizinga et al., European Journal of Cancer 2005; 41: 288–295.
Adolescent Adjustment and Maternal Breast Cancer: A Test of the “Faucet Hypothesis”
Lewis and Darby. Journal of Psychosocial Oncology 2003; 21: 4.,
Children’s Adjustment During the First Year of a Parent’s Cancer Diagnosis.
Nelson and While. Journal of Psychosocial Oncology, 2002; 20:1.
Adjustment of Children and Adolescents to parental cancer.
Welch, Wadsworth and Compas. Cancer 1996; 77: 1409-18.
Adolescent daughters of mothers with breast cancer: impact and implications.
Spira and Kenemore. Clinical Social Work Journal 2000; 28: 2.
The impact of parental cancer on children and the family: a review of the literature
Vissera et al., Cancer Treatment Reviews 2004; 30: 683–694.